Hello Blogasphere (how ever the heck you spell that)

Well I've finally gone and jumped on the blogging bandwagon ( I know I'm a bit behind the trend).

I'm hoping this blog can help me inform people about GLU1 DS (Glucose Transporter Type 1 Deficiency Syndrome) that affects my daughter, as well as only about 150 other people in the world. With such a rare genetic disorder you often feel alone so I'm hoping others will connect with me to share. I'll post more about GLUT1 later.

I also LOVE all things crafty. I am a brand new Stampin' Up! demonstrator but so far that is just a hobby. Once Vivi is in school full-time perhaps I'll be able to expand it into a full business. I sew & quilt (I'm mostly self taught so reading a pattern is still like reading Chinese to me), stamp & scrapbook. I have a little "business" at www.bellebebeboutique.com. I make super duper soft and lovey baby blankies as well as lots of other items.

Thanks for reading and I'll try to put interesting info on here or at least something not completely mundane and banal (your word of the day!).

:)